I was looking online and came across this book. I thought it was cute, and a helpful way to explain to Zoe and Zach what is about to happen.
http://www.mitoaction.org/pdf/bookGTube.pdf
This is something I just found with the most in depth detail of what is going to be taking place.
http://surgery.med.umich.edu/pediatric/clinical/patient_content/a-m/gastronomy_tube.shtml
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The kids and I
This blog started as Life's Struggles about my little boy, but as life proves you never know what is around the corner! Now, my blog is about the Life Struggles our family is facing with both of our amazing children.
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The kids and I
SHINE by: Rachel de Azevedo Coleman
Sometimes I see you stuck
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
Quotes
If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or far away.
~Henry David
~Henry David
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