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Friday, December 3, 2010

Milo's Button Buddies

Zach and My Button Buddies have teamed up with another adorable tubie --- Milo.
Milo and his family would like to donate My Button Buddies pads to their local children's hospital to brighten the faces on other families dealing with feeding tubes.
Please check out this wonderful cause and pass it to all the people you know.
THANKS!!!!!
http://www.milosbuttonbuddies.blogspot.com/

Tuesday, July 6, 2010

Wednesday, May 12, 2010

CaringBridge


PLEASE follow Zach's story over on CaringBridge.

He is having a rough go of things lately and I find it really hard to keep up here and there and learn all I need to learn about his disease.



http://www.caringbridge.org/visit/zacharyszilagyi



Thank you all so much for your support! AND I'm so very sorry I've let my blog go....

Monday, March 8, 2010

25 Million+, It is time to care about rare disease

I wanted to see if I could get your quick help. Change.org recently launched the 2010 Ideas for Change in America competition.One idea is titled: 25 Million+, It is time to care about rare disease.. I thought you might be interested in getting involved and recommend you check it out.

You can read more and vote for the idea by clicking the following link:http://www.change.org/ideas/view/25_million_it_is_time_to_care_about_rare_disease

The top 10 voted ideas will be presented at an event in Washington, DC to relevant members of the Obama Administration, and then promoted to Change.org's full community of more than 1 million people. So we could have a real impact.

Thanks for the help!