Thursday, May 21, 2009

Want Them to Go Away

All I'd like these days are for my nerves to go away.

I'm a wreck thinking about what is to come the next couple of months.....

First and foremost on my mind has been Zach's Summer Clinic, which is all set for July 27th I've been told we will be there for 3-4 hours.

Zach will be evaluated by a school psychologist, speech therapist, and an education specialist....threw play, observations and interviews with Doug and I. After the evaluation there is a staffing meeting to discuss Zach's results with us and we will find out if he is eligible for Pre-K Exceptional Student Education Program and/or other early intervention services. If he is we will be writing his IEP that day as well.

I don't know why I'm so nervous about this............partly I'm worried what if they say no - then what - what do we do? The other part is heck they aren't going to say no - he clearly isn't finished with his EI services - between his medical issues, his delays, his dyspraxia, and his SPD. Then that turns into OMG my baby will be in school 5 days a week from 8am-2pm.

I'm nervous about what to do, what to say, should we bring anyone - if so, who. I'm worried I'll ask and people won't be able to attend with us. I've already started making my lists (a book I'm reading told me to do so) so far we have........

List of types of assistance he will need...
List of what he needs to learn...
List of what he can do...
List of what he likes to do....

Then I'm worried about his appointment June 1st -- I hate putting him threw tests but these biopsies need to be ran again. I'm wondering when they will happen and how he will tolerate being put under again -- last time (during his surgery) he had a very hard time coming threw and could not hold his oxygen levels. I'm worried about what the tests show -- will the show nothing like what always seems to happen OR will the finally show what is wrong. From all of this comes the process of working to get him in out of state for help and where to go -- yep you've guessed it more nerves on my part.

Last comes the nerves about today.......Today will be a button change. I'd like to say it is his first but technically he had one 6 days post-op because of an accident where it got pulled out. He hasn't liked anyone near his button since it was placed almost 8 months ago but lately he has been even more protective over it. So I can only imagine how today is going to work.

I'm a bundle of nerves and I just wish for 24 hours I could get rid of them.

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