Thursday, July 24, 2008

Good News, Bad News.....

The good news - no feeding tube for now...Zach had some wight gain and some gain in height.
The GI was not "thrilled" but somewhat happy with this progress. He decided because Zach did have some progress to try medicine first.

The bad news....this doesn't put Zach out of the clear of getting a feeding tube. The doctor also said having gastroparesis at this age is not a very common thing and that the medication can have very sever side effects so I need to watch him closely.

The medications don't normally work very well to help GP so we have to wait (yet another waiting game) and see how Zach tolerates it. If he has any reactions to the medication we are to call right away and stop the medication then talk more about a feeding tube. If all goes well we wait until the end of October and see where his progress is taking him, then have a discussion from there.

The GI does not know why Zachary has GP, he said it could have been caused from Zach getting really sick at some point and this is the outcome or (more likely) Zachary was born with it. If it is because of the first the doctor said it will take years to go away, if it goes away. If Zach was born with it he will have it the rest of his life. The official diagnosis is "Idiopathic Gastroparesis".

I have come across a couple site from an adults stand point -- Zach is not able to tell me how he feels but I can only imagine.

http://www.youtube.com/watch?v=4zbmkjmie2Q

http://www.youtube.com/watch?v=niGsFFilZQk

http://www.g-pact.org/

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