Quick Zachary Update

We have some positive news and some very unsure of what is happening news.........

Drum Roll Please...................................................



Zachary has graduated out of PT just in time to start school! When he started his journey with Ms. Patty he was 2 weeks shy of turning 2 years old. His Gross Motor skills were at a one year old level. He graduated at 2 years 11 months old (one month before his 3rd birthday) -- JUST 1 year in PT........................ and his gross motor skills were at a 3 year 5 month level! This is HUGE news!!!!

He still has hypotonia, some issues with walking, and some new regressing issues with catching a ball. I was told to keep an eye on him and if anything becomes more of a concern he needs to come back. His PT also really would like him checked by his orthopedic doc and his neurologist just to be sure there is nothing more going on with him. She thought for now it was okay to discharge him into the care of the schools.

His OT has been working on visual tracking because of his poor eye contact. As she has been doing that we are noticing more visual issues occurring. He becomes very agitated and shuts down, blinks, or rubs his eyes. If he has been doing a lot of work with tracking he will come home and nap ----- LOOOOOOOOOOOONG naps upwards of 5+ hours, with me needing to wake him.

Ms Jerry is unsure if this is happening because of poor eyesight or because of his SPD.
I have set him up with his ophthalmologist for September 25th but I am hoping for a cancellation to get him in sooner..........the longer this is going on the worse he is becoming. Today, for example he seemed like he was on total overload after doing some visual work with a computer, he started shutting down, drooling, licking his hand, not being able to verbalize what was happening, crying to the point of not breathing. It took his SLP to pick him up, remove him from the situation by putting him in a little tent area and turning off the lights in the room. It was awful to see..........not only was I concerned, Ms Kristin was worried, and I could see a frightened look on Zoe's face as she watched what was happening around her.

I have to say it has been a while since I have cried at therapy......today wore me out, I cried I couldn't hold back --- watching Zach struggle is so hard to do at times......no parent should have to watch their child go threw the struggles we have seen. Please don't get me wrong....Zachary has come a very long way and I am so very thankful for the progress he has made but all that progress doesn't stop the worry of regression, the worry of further progress. I think today was worse for me because of getting him ready for school -- so much going on right now, so many emotions and worries.

Zach starts school on Monday --- I'm sure I'll be blogging then with pics too ;-)