Just a little catch up as things have been busy.......
Friday I received a call from Zoe's teacher saying that Zoe had a rash and was not acting herself (she said Zoe had been very slow since Monday in school) but that Zoe claimed to be fine when asked. I explained more about what they were looking into Zoe having. We got off the phone and the teacher sat to talk with Zoe explaining that she just got off the phone with mommy and it was okay to be honest about how she is feeling. Zoe told her she was tired and not feeling herself. My phone rang shortly after that so I ran to school and picked her up.
On my way to the school I called the pediatricians office and was told to come straight in. When we got there Zoe was very lethargic so the doctor made some calls one was to a local rheumatologist (our is out of the country right now) he wanted her admitted - but neither have admitting rights at our Children's Hospital. The next call she made was to the ER and she spoke with the Dr who was there at the time. It wasn't long before we were seen and the doctor there agrees to admit her. They drew 7 vials of blood while we were in the ER. After a couple hours Zoe's room was ready.
Zoe wanted Daddy to stay so he was AMAZING and stayed they had a mini camp out in the hospital.
Zoe was released 24 hours later. They did not find a virus. She does NOT have leukemia (we are all so thankful). They think this is either lupus or systemic JRA.....but we are waiting for more tests to be back. Her WBC count is going up BUT is still not normal.
This week I am to take her to her pediatrician tomorrow. Take her for another blood draw. Take her to either the rheumatologist that saw her in the hospital our ours. Because her WBC count has been low for 2 months that is a BIG concern we are to still go and see hematology/oncology as planed for next week.
As far as everything goes we have ruled out a lot but have not gotten to the root of what is happening.
Sunday, June 7, 2009
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1 comment:
Camping out is a fun way to remember a tough time in the hospital.
SO, so thankful it's not cancer.
I'm glad she has a teacher who cares enough to call you even though Zoe said she was fine.
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