The Latest Information on Zoe

Not all tests were back when we saw the doctor at 2:30pm, it may be Friday or later before some of them are back. Zoe must go back to the lab in another 10 days depending on the rest of the test results.

Okay so for the good news....her WBC and neutrophils are creeping up, but no where near normal right now. We are still to be on the lookout for a fever and if she ends up having one it is straight to the hospital.

Best case scenario she was saying that this would be a cyclic neutropenia -- but once she saw the C4 so low it sounded as if that wasn't the case. http://neutropenianet.org/what-it-is/different-types-neutropenia/ or http://neutropenianet.org/what-it-is/


The bad news is that the C4 was very low.......the doctor told me this could have to do with 3 things, JRA (please let it be this, as we've delt woth JRA for years), lupus, or leukemia.

She brought up leukemia 4 different times - this is what is so very scary to me.

We are still waiting on the smear which is the most important test right now because it will show if her cells are normal or abnormal which can lead us to if this is leukemia or cancer.

I'm to make an appointment with her rheumatologist ASAP -- only problem is she is out of the country for 2 weeks. I did call when we got home and spoke with her nurse....who told me the C4 won't lean them towards lupus or JRA but more towards leukemia. She wanted to wait for the results of the other blood tests. After those are back there are more she will add.

Our pediatrician is talking with the infectious disease doctor who is leaning towards this being lupus or leukemia based on the tests and right now he doesn't need to see her because she has had NO fever....therefore NO infection.

She has also been in contact with hematology who wants to see the rest of the tests. She was calling as I left with the latest information.


I'm feeling better that her levels are rising BUT still very very worried about what is going on.