YIPPEE!!!!!!!
YIPPEE!!!!!!!
YIPPEE!!!!!!!
I just got the best news EVER.....................Our insurance is going to cover 100% of Zach's testing for RSS!!!!!
I am so ecstatic I was jumping up and down after I got off the phone!!!! Even Debbie (our genetics counselor) was so shocked that it was going to be 100% covered, she has never seen this test covered before!
I swear this is a sign.......maybe, just maybe, it will show up and we will with out a doubt have a name for what is going on with Zach! I felt like if we were going to have to pay for the test that it would definitely show up with nothing, and that still doesn't rule out RSS - just because that would be our luck. Now it is going to be covered ---- please, oh please, let us have an answer!
I need to remember one test only has a 7-10% chance of finding it and the other 20% - if we find nothing with this test, RSS is still not ruled out. I just want to have a definite answer on this, I need to have a name.
In my heart I know this is what Zach has.
It is much harder knowing nothing then knowing something!
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The kids and I
This blog started as Life's Struggles about my little boy, but as life proves you never know what is around the corner! Now, my blog is about the Life Struggles our family is facing with both of our amazing children.
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SHINE by: Rachel de Azevedo Coleman
Sometimes I see you stuck
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
Quotes
If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or far away.
~Henry David
~Henry David
1 comment:
You don't know me but I had to comment on your blog. We aren't experiencing the exact problems you are but we are dealing with a possible genetic condition that caused a tumor to grow on my little girls optic nerve. I recieved this same wonderful news that the test would be covered about 3 weeks ago and I understand your sentiment. This has all been so stressful, your comments almost brought me to tears for your little man. It is sooo much better to know for sure. We have 4 more weeks till we get the results. I hope you get the answers you all need. May God bless your family.
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