OH The Decisions.....

Today was really a great day for the most part...

This morning we had to go to Zoe's school to see her receive her award. 44 children in the school (one from each class) received an award for the Character of Fairness - "Zoe has exemplified fairness by: always thinking about how her actions will affect others. She always tells the truth, takes turns, and plays by the rules". I was so very proud seeing my little girl becoming such a big kid. Standing up there as these kind words were read about her, in front of so many people. What a proud moment as parents it was!!!!

After that was done it was home for Zach and I, and off to work for Doug. I had calls that needed to be made. One of those calls was to our geneticist. We found that there are 2 test she can give Zachary to determine RSS...

One test has a 7-10% chance of finding RSS

The other has a 20% chance of finding RSS

These test will cost $900 ---- $900, 900 dollars --- for the possibility of not finding anything! If we find nothing, it DOES NOT rule out RSS! If we find something, that is all it is, something - a name for what is wrong with Zach. RSS is not fixable, it is treatable - but no matter what life will always be different for Zach.

So, we could pay $900 to find nothing, or maybe to find something. No matter what, the treatment is still the same - a feeding tube, and/or growth hormone injections.

Our geneticist and our pediatrician both say the same thing - if we need 100% proof (but the only way we get that, is the slim chance the tests say positive) go for it. If not, we are taking the right steps towards helping Zach, the same steps we would take knowing it is RSS without a doubt.

According to our pediatrician there is enough in her opinion to just go ahead and call it RSS. Our geneticist wants to observe him again before giving her opinion on the matter. Since he has not grown since our last appointment she feels RSS might be what it is but needs to see him again.

Doug and I are going in on Friday to discuss all of this with Debbie - she is from the genetics department. I want to weigh out all the pros and cons before we make a decision one way or another on the testing.

I also needed to make a call to the Pediatric Surgery Department. Zach's evaluation is all scheduled for Oct. 13th - Just 2 weeks away. They told me that his g-tube surgery will be anywhere from a week after to a month after that appointment, depending on the Drs schedule. Really right around the corner. I have so many questions, so much concern BUT overall I know this is the right thing, the right way to help Zach.

Decisions - I can't wait for a day where I have none to be made!