Saturday, May 2, 2009

How Long Can a Test Be? 72 hours, That is How Long.....

55 hours after the test (no so good of a pic) but his back is still reacting.

The last day of his test

First day of the test

About 40 minutes and some cream after the test was done: all red = reactions



Last week started with a bang on Monday when I took Zach to the allergist to begin what seems to be the longest 72 hours I've ever been threw in my life.

On Zach's back the doctor placed 14 patches that each had a paste made of different foods. This could not get wet and needed to stay on for a full 72 hours. He was checking for delayed reactions. Zach was in a ton of pain over the next couple of days, he itched threw the tape at one point. He cried most of the week and wouldn't walk; he wanted carried so his back wouldn't be bothered. The only thing we found that calmed him was for him to take some Children’s Motrin. We had many fights with the tape because Zach sweats so much that he had to be re-taped 5 times.

By the time Thursday rolled around everyone in the house was ready for Zach to get back to normal and stop fussing. I even left to get to the doctor early because he was in such pain. Good thing the doctor took him early too.

We found out that Zach is allergic to Milk and Soy (we've known this since he was an infant), Wheat, Egg, Barley, Rye, and tape. A couple others came back with a small amount of red so I'm going to be cautious of many things.
The allergist is very concerned because Zach is presenting like a case of EGID
http://www.apfed.org/ He has tried many times to get in contact with Zach's GI with no avail. EGID is diagnosed between both the allergist and the GI - so we really need them working together on this. Because of the lack of contact....Zach's allergist has decided to take things into his own hands and will be sending us out of state to hopefully one of the countries top hospitals that specialize in EGID.


The positive news out of all of this is we are getting somewhere. IF EGID is what is wrong it will make sense why Zach's special formula has been the only thing that has made him healthy his whole life.


Maybe, just maybe because of this test and after 2 1/2 years of searching we may have a real name for what is happening to our son.

2 comments:

Annette W. said...

Answers. Amen!

Jessica said...

I'm so glad that you have answers now! It sounds like a full vegan/gluten free diet might be what the little guy needs. It can be done! Hang in there.