I should have been on here sooner as we received news about the seizures on Friday. Thing have been crazy ever since.
The EEG showed spikes.
I am taking Zachary to the neurologist Tuesday morning first thing. I'm a little upset with this because we will not be seeing the doctor but his ARNP (his first available appointment was not until June/July) -- the last time we saw her she walked in didn't shut the door yet, didn't even look at Zach yet and said "you aren't going to find answers here" Right there was a huge sign to me me about her. I just don't see why you take a kid like Zach who with his developmental delays...right there is a sign he has neurological issues and you totally dismiss him without a second glance! I don't think I had ever been so hurt at an appointment before that or after.
Saturday Zachary had another seizure this time it was followed by vomiting. This episode now makes the 4th one in two weeks.
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The kids and I
This blog started as Life's Struggles about my little boy, but as life proves you never know what is around the corner! Now, my blog is about the Life Struggles our family is facing with both of our amazing children.
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The kids and I
SHINE by: Rachel de Azevedo Coleman
Sometimes I see you stuck
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
Quotes
If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or far away.
~Henry David
~Henry David
2 comments:
Oh, another seizure...ugh! His little body must be so tired. I know after Meghan's seizures they said it was like she ran a marathon...exhausted!
I hope this apt goes better for you and Zach!
Hi sophie, just wanna say hi, Im thinking of you today. I hope everything went well with Zach's appt. ((HUGS))!
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