Just a quick update on Tuesdays...................
Wednesday morning, first thing I took Zach to see his pediatrician. She told me she believed that he had a seizure from holding his breath too long. I've seen him have breath holding episodes that lasted much longer and he has never passed out let alone have a seizure from one of the episodes - so I'm a little taken back by the whole episode.
I found out what normally happens to him is called a "Blue Spell" http://www.aboutkidshealth.ca/HeartConditions/Cyanosis-Blue-Spells.aspx?articleID=7442&categoryID=HC-nh1-04c
Seizures can be caused by a blue spell but they rarely happen with one.
She did come to the conclusion from the discription I was able to give her that he was not breathing at the end of the episode.
Zachary will be going for another EEG (he had one about 11 months ago) next Thursday. I was taken back at how fast they got him in - last time it took about a month to have it scheduled.
He will also be going to a pediatric cardiologist on Wednesday. Again totally surprised at how fast we got in to a brand new Dr for us. They told me they don't take what happened lightly and it could very well be a sign of a serious heart defect. They also told me to be prepared to stay there for 3 hours - YIKES!
Zach pediatrician said the good news is (if you want to look at it as) that normally defects like this would be caught sooner so maybe there isn't one. I'm almost looking at it as a bad thing because if it is there.......well I'm sure you all know what I'm thinking.
I was also told not to be surprised it the cardiologist decides to also send Zachary to the pediatric pulmonologist as well.
So next week looks like this :
Monday: DP Appointment
Tuesday: 3 hours of therapy
Wednesday: 3 Dr appointments -- cardio, GI, and the geneticist
Thursday: EEG
Friday: BREATHE --- nothing happening
Thursday, February 26, 2009
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Goodness! Heart problems are so, so scary. Meghan had tachicardia...fast heartrate...when we took her to the ER at 17 days old, her rate was 320. Things got worse before they got better, but they did.
You are a strong woman! How do you cope with the stress? Are you and your husband able to find time together? Do you have family close by?
Our experience is that 3 hours at the cardiologist is normal. (Our son even had to go once at five days of age.) When they have to do EKGs and ECGs...and consultations...It's hard! We have recently found that a portable DVD player is helpful. Meghan hates four walls in a dr's office, even with toys. Meghan saw an electrophysiologist (type of cardiologist). I noticed you are in FL. Are you close to AI DuPont Children's Hospital...there is one in Delaware, and that is where we go for specialists.
I'm praying for Zach. And for you.
Take care!
Annette
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