Update

Zach had his ABR done on Thursday and it has taken me too long to get on with an update. It went perfect - well not perfect - but wonderful!

First the meds they gave him caused some problems, they were given to him threw his tubie and I believe they caused some pain. Zach was falling asleep, his eyes were at least shut but he was thrashing around in my arms, screaming as if in pain. We don't know what it was -I believe it was some sort of reaction to the medication - but have no real proof of that.

Other then that (which was our only setback) Zach did superb! The audiologist told me that his ABR pictures were the most beautiful she'd seen in months - this of course means his hearing is normal. His speech issues without a doubt are 100% because his brain isn't wired quite right - he is Apraxic - this is fine by me - he hears perfect - this is such a relief!

We also saw his dietitian and she did not need to increase his feeds because he.......................................................................................................................GAINED weight! In the 2 1/2 weeks of being tube feed my little man gained 1lb 4oz this is HUGE!!!!! We were very worried he would at the very least have stayed the same weight if not that he would have lost weight because he is eating very little by mouth. She did need to change the amount of time he is on his pump -- he is still doing 4 feeds during the day 3 of which are an hour, but his forth feed will now be 2 hours because he is not tolerating the last feed. We go back in 3 weeks to make sure all is still going well.