I'm a day late as yesterday was a very busy day for us.
Yesterday was Zachary's 2nd birthday and what a day it was.....
We woke up and went to get his birthday pictures done at 9am, shopping at Target, back to pick up the portraits, to the Dr for his 2 year check up, to McDonald's for a quick birthday lunch, then to therapy (OT and ST), as soon as therapy was done we rushed to pick up Zoe. AHHH I'm tired thinking of how the day went! Zach was not in a mood for a nap as he knew it was his day. Normally where he would sleep at least 4 hours I only got him to sleep for 45 minutes. Doug brought him a yummy Chinese dinner home, and I made a marble bunt cake for desert. Presents were opened - I have no clue who was more excited Zach or Zoe. We all played until it was time for bed.
Zachary had a great day!!!!
Mommy, however, not so much....
More or less the day was GREAT until we went to the Dr and it was just downhill from there. Zach took yet another dip on the charts - by now he should be following a curve he has created for himself but instead of a straight line or going up he went even further below where he was. He gained a pound and a half in 6 months. BUT really that isn't accurate he was up to 22lbs 7.8oz last he saw the GI and has lost over a pound since then. He has grown an inch and a half and now stands 31 1/2 inches tall. Zachary is still categorized as FTT http://www.magicfoundation.org/www/docs/176
To top all off the Dr noticed his hypotonia is getting much worse. Zach is still unable to go from laying on his back to sitting up. He used to be able to hold his head level with his body as you helped him get into the sitting position - yesterday while the Dr was pulling him up he could not do this. I have been noticing this at home as I help him up from the changing table but I haven't known what to think about it - maybe it was a bit of denial knowing it wasn't right. To see it when she was helping him brought a whole new light to the situation - my little boy looked like a rag doll being lifted from that exam table - it was completely heartbreaking!
Here is a link as to what I'm trying to describe:
She also took note of his decrease in mouth movements, decrease in his ability to swallow, and his walking getting worse, his foot is now turning almost all of the way in as he tries to walk (this doesn't happen all of the time and some days are better then others), and the increase in clumsiness, among many other things. Because of all of this she has decided that it would be best to test him for MD (muscular dystrophy) she is not the first Dr to bring MD into the possibilities of what may be wrong with Zachary and I think that is what makes it even more worrisome. http://en.wikipedia.org/wiki/Muscular_dystrophy
Just another one of Life Struggles for Zachary --- another Life Struggle that he will overcome!!!!
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