How does life go from a great day to a bad day more times then not?
Today was supposed to be filled with joy -- it was Zoe's last day of VPK and they had a big party for the students and parents. Tonight is a VPK graduation ceremony.
As I was leaving the house to go to her party, I received a phone call. It was our pediatrician calling on a blood test Zachary just had done on Friday. They told me I needed to come in ASAP today and talk with the Dr. We decided I would come in after therapy at 2:30 since they are right across the parking lot from one another. After that call my day went down hill. I knew it wasn't good news, if I needed to come in. Zach and I went to the party and I put a smile on my face for Zoe.
On our way home I couldn't wait any longer to know what was going on, so I called and they said come in now.
YEP bad news - his IGF-1 is low. What is was told is that he will basically need GH (growth hormone) but I need to take him to the endocrinologist. While we were there I had a chance to bring up some other problems that have been getting worse for Zachary and she has decided to give us a referral to the Genetics department as well. - She was going to do this anyway but figured now is the best time.
I was told that we simply need more brain power to help fix Zachary and that all of these specialist and her are going to need to pull together to help our little Zach.
It hurts so bad - as always, we've known there were issues going on and as happy as I should be because we are gaining some knowledge of all of them - I'm numb, I'm in a weird denial, and my body aches to its core. This is part of my Life's Struggles and progress rolled into one ball.
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The kids and I
This blog started as Life's Struggles about my little boy, but as life proves you never know what is around the corner! Now, my blog is about the Life Struggles our family is facing with both of our amazing children.
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- Dance Is Done.......
- Big Bad Wolf
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- Who Said Friday Is A Good Day?
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- Monday.....Already?!?!
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The kids and I
SHINE by: Rachel de Azevedo Coleman
Sometimes I see you stuck
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
For such a long time
A daily nothing new
Pretend I don't mind
List of things you'll never do
Until you do - you do - you shine
The days and months and years
They run together
Is it just one day? or is it forever?
You've taught me in your lifetime
More then I've learned in mine
And you do, you do, you shine
Shine shine shine shine shine
Shine your light on me
Shine shine shine shine shine
Everyone will see
I'm so glad you are mine
And you'll shine in your own time
Well, maybe I'm too close to see you clearly
Or is it now my role to simply believe?
You're just one of those mysteries
That may never be solved in time
But you do - you do - you shine
Quotes
If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or far away.
~Henry David
~Henry David
2 comments:
It's okay to feel that way. It's part of the natural process. Keep the faith and know that 100% you are doing your absolute best you can. God doesn't give just any mother an extraordinary child. He gives the strong, fighting mothers an extraordinary child. Just knowing that makes me feel extraordinary.
I'm so sorry this hill popped up in the road..another doctor, another appointment, and another worry. But Hon, you're figuring it out, you're making it, and he is THRIVING! Maybe not health wise..but man..look at that cute little face...look at how he is following directions now, and listen to the sudden inflection in his voice when he talks.
You're an awesome momma, and you are doing such a phenominal job with Zach and Zoe.
Know that, keep on with the fight, and someday, you'll have all of the answers...until then, one day at a time babe...and try to focus on the good..because it's GOOD!!!
(((HUGS)))
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