What A Day!!!

Today started out okay - that was until we got to out pediatricians office....

Zoe has Strep throat without a doubt. Poor kid - bad Mommy for thinking she was just being dramatic. She'll get better soon as we've started antibiotics today.

Zachary -- well we need a NEW Dr!!!! A couple of weeks ago Zach had seen a neurologist because of what we thought were seizures (they still haven't been ruled out) The neurologist was VERY concerned with Zachary's size and highly recommended us seeing a GI and then an endocrinologist if the GI couldn't find anything. Of course he couldn't send us to the GI that had to be approved threw our pediatrician - which more or less she flat out refused to do. She said she has already run tests on Zach that have come back negative and sending him would be a waste of every one's time (even though the last of these test were run when he was 6-12 months old). She also doesn't believe Zach has SPD and that OT is a COMPLETE waste of time. The only reason she seemed to think SPD was a wrong diagnosis was because he isn't autistic - which you DO NOT have to be in order to have SPD. SPD is also known as the hidden issue -- this is for a reason, sometimes you see it other times it doesn't present itself so clearly. She does believe the diagnosis of Apraxia, however, is dead on.

I do know something is definitely wrong with my son (much more then Apraxia) - For once I stood up to her and as she was saying things about my son I would stop her and say wait a minute --- no he has NEVER done that (mouthing objects), or but when we are in a room of people he just stands and looks at the ground, or ect..... ect..... She had NO idea what to say to me. The neurologist had said our Dr is a good Dr but she tends to be very holistic and Zach definitely has issues that need to be addressed head on. The neurologist also believed that Zach has SPD and Apraxia.

I have a call into Zach's neurologist for recommendations and I'm trying so hard to get a hold of the therapy place (so far just a machine is picking up) to see who they would recommend.

I'm so very frustrated -- my son has had issues from day two of his life when we were told he may go into cardiac arrest because of his thyroid. We have been so concerned with so many things in 19 months of his life and now to be denied going to a specialist because she feels he is fine yet in 2 weeks I've had 3 professionals say --- "NO, Something is definitely wrong with Zach" UGH!!! I just want to scream!!!!!!!

What a day it has been!!!!!!!!!

On a good note - Zach did much better with his brushing and joint compressions today, he even asked for "more" by signing as soon as I signed "all done".